Myeloproliferative neoplasms (MPN) are a group of rare disorders that are caused by mutations in stem cells in the bone marrow. Depending on the type of MPN, the bone marrow of patients produces too many red blood cells, white blood cells, platelets, or a combination of cell types. Furthermore, these blood cells may no longer function properly. In most cases MPN follows an indolent course, meaning that the disease remains stable for many years, or progresses slowly. MPNs are rare, with about a thousand new diagnoses in Belgium in 2021.
The main types of MPN consist of polycythemia vera, essential thrombocytopenia and myelofibrosis. Of note, also chronic myeloid leukemia (CML), is considered to be an MPN, but this disease entity is discussed in a separate information sheet.
In this category of disorder
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Patient materials
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For professionals
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Relevant patient organisations
Get connected to different patient organisations that connect you to people with the same medical history. Support amongst peers helps the burden and stress of the daily challenges that come with disorders.
Find below some organisations we can recommend.
Be aware that these groups operate mainly in Dutch or French given their local nature, don’t hesitate to contact them nevertheless.
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